Experience of Ambulatory Cancer Care

Vehviläinen-Julkunen, Katri, Turpeinen, Saija, Kvist, Tarja, Ryden-Kortelainen, Margaretha, Nelimarkka, Siiri, Enshaeifar, Shirin and Faithfull, Sara (2020) Experience of Ambulatory Cancer Care Cancer Nursing, Publis.

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Abstract

Background: The move of cancer treatment into the outpatient setting can impact patient experience. Understanding how service delivery change impacts different people requires service feedback to inform future delivery development. The use of patient experience questionnaires often generates large amount of free-text data that are difficult to analyze. Objective: The aim of this study was to describe a proof-of-concept study exploring the experiences and perceptions of people undergoing cancer treatment, using novel analysis techniques to provide rapid free-text data analysis. Method: This was a mixed-methods qualitative analysis from qualitative questions gathered in Finland using the National Cancer Patient Experience Survey (n = 92 of 208 patients) and supplemented with 7 focus groups (31 people with cancer). Data were analyzed using natural language processing, via an automated sentiment analysis algorithm and supported with focus groups to inform the initial thematic analysis. Results: Participants were on average 65 years of age. Of the 196 free-text comments, 121 (73.6%) were positive about patient experiences and 75 (38.5%) negative with suggestions for improvement. Conclusion: Communication between patients and clinicians was an indicator of quality, and lack of psychological support was a barrier to quality care provision. The methodology of using sentiment analysis for free content to review quality was demonstrated through this study as a novel and feasible method to look at large-scale qualitative data. Implications for practice: Using the free content on experience of care questionnaire to review gaps or needs in services is valuable in developing future practice.

Item Type:	Article
Divisions :	Faculty of Health and Medical Sciences > School of Health Sciences
Authors :	Name Email ORCID Vehviläinen-Julkunen, Katri Turpeinen, Saija Kvist, Tarja Ryden-Kortelainen, Margaretha Nelimarkka, Siiri Enshaeifar, Shirin Faithfull, Sara S.Faithfull@surrey.ac.uk
Date :	29 June 2020
DOI :	10.1097/NCC.0000000000000845
Copyright Disclaimer :	Copyright © 2020 Wolters Kluwer Health, Inc. All rights reserved
Additional Information :	Embargo Pending Metadata Pending Article Online Ahead of Print Awaiting Accepted Manuscript version from Author.
Depositing User :	James Marshall
Date Deposited :	12 Aug 2020 14:33
Last Modified :	12 Aug 2020 14:33
URI:	http://epubs.surrey.ac.uk/id/eprint/858397

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