"LEARN"ing what is important to children and young people with intellectual disabilities when they are in hospital.

Oulton, K, Sell, D and Gibson, Faith (2018) "LEARN"ing what is important to children and young people with intellectual disabilities when they are in hospital. Journal of Applied Research in Intellectual Disabilities, 31 (5). pp. 792-803.

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Abstract

Background

The need to review health service provision for children and young people (CYP) with disabilities and their families in the United Kingdom has been expressed in multiple reports: the most consistent message being that services need to be tailored to meet their individual needs. Our aim was to understand the hospital related needs and experiences of CYP with intellectual disabilities.

Method

An ethnographic study of a neurosciences ward and out-patient department was conducted within a paediatric tertiary hospital setting.

Results

Five themes, developed using the acronym LEARN, explained what is important to CYP with intellectual disabilities in hospital; 1) Little things make the biggest difference, 2) Eliminate unnecessary waiting, 3) Avoid boredom, 4) Routine and home comforts are key and 5) Never assume.

Conclusions

It is imperative that we continue to challenge the idea that it is acceptable to exclude CYP with intellectual disabilities from research because of their inability to participate.

Item Type:	Article
Divisions :	Faculty of Health and Medical Sciences > School of Health Sciences
Authors :	Name Email ORCID Oulton, K Sell, D Gibson, Faith f.gibson@surrey.ac.uk
Date :	6 August 2018
Funders :	Great Ormond Street Hospital Children's Charity
DOI :	10.1111/jar.12433
Copyright Disclaimer :	© 2018 The Authors. Journal of Applied Research in Intellectual Disabilities Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial‐NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
Uncontrolled Keywords :	Children and young people; Ethnography; Healthcare; Hospital; Intellectual disabilities
Depositing User :	Melanie Hughes
Date Deposited :	29 Nov 2017 09:19
Last Modified :	26 Jul 2019 12:12
URI:	http://epubs.surrey.ac.uk/id/eprint/845060

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