Working in collaboration with young people and health professionals. a staged approach to the implementation of a randomised controlled trial

Aldiss, S, Taylor, RM, Soanes, L, Maguire, R, Sage, M, Kearney, N and Gibson, F (2011) Working in collaboration with young people and health professionals. a staged approach to the implementation of a randomised controlled trial Journal of Research in Nursing, 16 (6). pp. 561-576.

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Abstract

ASyMS© is an Advanced Symptom Management System utilising mobile phone technology to monitor chemotherapy-related symptoms and promote self-care. It was first developed with an adult cancer population and is now being evaluated with young people through an iterative development process. ASyMS© involves patients recording and sending symptom reports to the hospital and receiving tailored self-care advice. Health professionals are alerted when severe symptoms are reported. Three phases of the ASyMS©-YG (young people) study are complete. Phase 1 involved young people identifying the symptoms to be assessed. Phase 2 involved young people testing the symptom report system, and ascertaining young people's, parents' and professionals' perceptions of ASyMS©-YG. This paper reports on Phase 3, in which the system was developed further in preparation for a randomised controlled trial (RCT). Health professionals devised an alert system based on risk modelling side-effect severity, and young people and professionals developed self-care advice. A pilot study was conducted to test the alert system and study design in readiness for a definitive RCT. The contribution young people and professionals have made to this project is invaluable in evaluating the practical effectiveness of ASyMS©-YG and ensuring the intervention is acceptable and works in everyday practice. © The Author(s) 2010.

Item Type:	Article
Subjects :	Biosciences and medicine
Divisions :	Faculty of Health and Medical Sciences > School of Biosciences and Medicine
Authors :	Name Email ORCID Aldiss, S Taylor, RM Soanes, L Maguire, R Sage, M Kearney, N Gibson, F
Date :	1 November 2011
DOI :	10.1177/1744987110380803
Depositing User :	Symplectic Elements
Date Deposited :	01 Jun 2016 15:57
Last Modified :	31 Oct 2017 18:21
URI:	http://epubs.surrey.ac.uk/id/eprint/810891

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