University of Surrey

Test tubes in the lab Research in the ATI Dance Research

A qualitative analysis of psychosocial needs and support impacts in families affected by young sudden cardiac death: The role of community and peer support

Steffen, Edith Maria, Timotijevic, Lada and Coyle, Adrian (2020) A qualitative analysis of psychosocial needs and support impacts in families affected by young sudden cardiac death: The role of community and peer support European Journal of Cardiovascular Nursing, 1474515120.

[img]
Preview
Text
A qualitative analysis of psychosocial needs - AAM.pdf - Accepted version Manuscript

Download (397kB) | Preview

Abstract

Background

Young sudden cardiac death (YSCD), often occurring in previously healthy individuals, is a tragic event with devastating impact on affected families, who are at heightened risk of posttraumatic stress and prolonged grief and may themselves be at risk of YSCD. Previous research suggests that surviving family members’ psychosocial support needs are often unmet.

Purpose

This study sought to identify how YSCD-affected families experience dedicated community and peer support in light of their psychosocial support needs.

Methods

The study used a qualitative design, employing a thematic analysis of focus group and interview data. Three focus groups and five individual interviews were conducted with affected family members (N = 19). The sample was drawn from a UK-based charity, Cardiac Risk in the Young. Audio-recordings of the focus groups and interviews were transcribed and subjected to thematic analysis.

Results

Three super-ordinate themes were identified: 1. YSCD community support as offering a place of safety, 2. YSCD community support as fostering sense-making, 3. YSCD community support as facilitating finding new meaning.

Conclusions

YSCD-affected families can benefit from access to dedicated community and peer support that offers a safe environment, provides affiliation, understanding and normalisation and enables sense-making and the rebuilding of a sense of self. Dedicated community support can facilitate meaningful re-engagement with life through helping prevent YSCD and through memorialisation and legacy-building to maintain a continuing bond with the deceased. Clinicians need to be aware of the need to incorporate available community and peer support into patient pathways.

Item Type: Article
Divisions : Faculty of Health and Medical Sciences > School of Psychology
Authors :
NameEmailORCID
Steffen, Edith Maria
Timotijevic, LadaL.Timotijevic@surrey.ac.uk
Coyle, Adrian
Date : 5 May 2020
Funders : Cardiac Risk in the Young (CRY)
DOI : 10.1177/1474515120922347
Copyright Disclaimer : Copyright © 2020 by European Society of Cardiology.
Uncontrolled Keywords : Young sudden cardiac death; Cardiac arrest; Bereavement; Peer support; Unascertained death; Sudden arrhythmic death syndrome
Depositing User : Clive Harris
Date Deposited : 11 May 2020 15:04
Last Modified : 11 May 2020 15:04
URI: http://epubs.surrey.ac.uk/id/eprint/856375

Actions (login required)

View Item View Item

Downloads

Downloads per month over past year


Information about this web site

© The University of Surrey, Guildford, Surrey, GU2 7XH, United Kingdom.
+44 (0)1483 300800