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Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance

Aldiss, Susie, Fern, Lorna A, Phillips, Robert S, Callaghan, Amy, Dyker, Karen, Gravestock, Helen, Groszmann, Michael, Hamrang, Leila, Hough, Rachael, McGeachy, Demi , Morgan, Sue, Smith, Sam, Upadhyaya, Sheela, Veitch, Helen, Veitch, Lara, Williamson, Max, Whelan, Jeremy S and Gibson, Faith (2019) Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance BMJ Open, 9 (8), e028119. pp. 1-10.

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Abstract

Objectives To conduct a UK-wide survey of young people who have experienced cancer, carers and professionals, to identify and prioritise research questions to inform decisions of research funders and support the case for research with this unique cancer population.

Design James Lind Alliance Priority Setting Partnership.

Setting UK health service and community.

Methods A steering group oversaw the initiative and partner organisations were recruited. Unanswered questions were collected in an online survey. Evidence searching verified uncertainties. An interim survey was used to rank questions prior to a final prioritisation workshop.

Participants Young people aged 13–24 years with a current or previous cancer diagnosis, their families, friends, partners and professionals who work with this population.

Results Two hundred and ninety-two respondents submitted 855 potential questions. Following a refining process and removal of ‘out of scope’ questions, 208 unique questions remained. Systematic evidence checking identified seven answered questions and 16 were the subject of ongoing studies. The interim survey was completed by 174 participants. The top 30 questions were prioritised at a workshop attended by 25 young people, parents and multidisciplinary professionals. The top three priorities are: (1) What psychological support package improves psychological well-being, social functioning and mental health during and after treatment? (2) What interventions, including self-care, can reduce or reverse adverse short-term and long-term effects of cancer treatment? (3) What are the best strategies to improve access to clinical trials? The remaining questions reflect the complete cancer pathway: new therapies, life after cancer, support, education/employment, relapse and end-of-life care.

Conclusions We have identified shared research priorities for young people with cancer using a rigorous, person-centred approach involving stakeholders typically not involved in setting the research agenda. The breadth of priorities suggest future research should focus on holistic and psychosocial care delivery as well as traditional drug/biology research.

Item Type: Article
Divisions : Faculty of Health and Medical Sciences > School of Health Sciences
Authors :
NameEmailORCID
Aldiss, Susies.aldiss@surrey.ac.uk
Fern, Lorna A
Phillips, Robert S
Callaghan, Amy
Dyker, Karen
Gravestock, Helen
Groszmann, Michael
Hamrang, Leila
Hough, Rachael
McGeachy, Demi
Morgan, Sue
Smith, Sam
Upadhyaya, Sheela
Veitch, Helen
Veitch, Lara
Williamson, Max
Whelan, Jeremy S
Gibson, Faithf.gibson@surrey.ac.uk
Date : 5 August 2019
Funders : Teenage Cancer Trust, CLIC Sargent, Children with Cancer UK
DOI : 10.1136/bmjopen-2018-028119
Copyright Disclaimer : This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
Depositing User : Clive Harris
Date Deposited : 01 Nov 2019 08:29
Last Modified : 01 Nov 2019 08:29
URI: http://epubs.surrey.ac.uk/id/eprint/853019

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