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Measuring health-related quality of life of care home residents, comparison of self-report with staff proxy responses for EQ-5D-5L and HowRu: protocol for assessing proxy reliability in care home outcome testing

Usman, Adeela, Lewis, Sarah, Hinsliff-Smith, Kathryn, Long, Annabelle, Housley, Gemma, Jordan, Jake, Gage, Heather, Dening, Tom, Gladman, John R F and Gordon, Adam L (2018) Measuring health-related quality of life of care home residents, comparison of self-report with staff proxy responses for EQ-5D-5L and HowRu: protocol for assessing proxy reliability in care home outcome testing BMJ Open, 8 (8), e022127. pp. 1-6.

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Abstract

Introduction

Research into interventions to improve health and well-being for older people living in care homes is increasingly common. Health-related quality of life (HRQoL) is frequently used as an outcome measure, but collecting both self-reported and proxy HRQoL measures is challenging in this setting. This study will investigate the reliability of UK care home staff as proxy respondents for the EQ-5D-5L and HowRu measures.

Methods and analysis

This is a prospective cohort study of a subpopulation of care home residents recruited to the larger Proactive Healthcare for Older People in Care Homes (PEACH) study. It will recruit residents ≥60 years across 24 care homes and not receiving short stay or respite care. The sample size is 160 participants. Resident and care home staff proxy EQ-5D-5L and HowRu responses will be collected monthly for 3 months. Weighted kappa statistics and intraclass correlation adjusted for clustering at the care home level will be used to measure agreement between resident and proxy responses. The extent to which staff variables (gender, age group, length of time caring, role, how well they know the resident, length of time working in care homes and in specialist gerontological practice) influence the level of agreement between self-reported and proxy responses will be considered using a multilevel mixed-effect regression model.

Ethics and dissemination

The PEACH study protocol was reviewed by the UK Health Research Authority and University of Nottingham Research Ethics Committee and was determined to be a service development project. We will publish this study in a peer-reviewed journal with international readership and disseminate it through relevant national stakeholder networks and specialist societies.

Item Type: Article
Divisions : Faculty of Health and Medical Sciences > School of Biosciences and Medicine
Authors :
NameEmailORCID
Usman, Adeela
Lewis, Sarah
Hinsliff-Smith, Kathryn
Long, Annabelle
Housley, Gemma
Jordan, Jakejake.jordan@surrey.ac.uk
Gage, HeatherH.Gage@surrey.ac.uk
Dening, Tom
Gladman, John R F
Gordon, Adam L
Date : 17 August 2018
DOI : 10.1136/bmjopen-2018-022127
Copyright Disclaimer : © Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
Depositing User : Clive Harris
Date Deposited : 05 Dec 2018 15:15
Last Modified : 05 Dec 2018 15:20
URI: http://epubs.surrey.ac.uk/id/eprint/849988

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