University of Surrey

Test tubes in the lab Research in the ATI Dance Research

Optimum hospice at home services for end-of-life care: protocol of a mixed-methods study employing realist evaluation

Butler, Claire, Brigden, Charlotte, Gage, Heather, Williams, Peter, Holdsworth, Laura, Greene, Kay, Wee, Bee, Barclay, Stephen and Wilson, Patricia (2018) Optimum hospice at home services for end-of-life care: protocol of a mixed-methods study employing realist evaluation BMJ Open, 8 (5), e021192. e021192-1 - e021192-8.

[img]
Preview
Text
Optimum hospice at home services for end-of-life care.pdf - Version of Record
Available under License Creative Commons Attribution.

Download (272kB) | Preview

Abstract

Introduction

Hospice at home (HAH) services aim to enable patients to be cared for and die in their place of choice, if that is at home, and to achieve a ‘good death’. There is a considerable range of HAH services operating in England. The published evidence focuses on evaluations of individual services which vary considerably, and there is a lack of consistency in terms of the outcome measures reported. The evidence, therefore, does not provide generalisable information, so the question ‘What are the features of hospice at home service models that work, for whom, and under what circumstances?’ remains unanswered. The study aims to answer this question.

Methods and analysis

This is a mixed-methods study in three phases informed by realist evaluation methodology. All HAH services in England will be invited to participate in a telephone survey to enable the development of a typology of services. In the second phase, case study sites representing the different service types will collect patient data and recruit carers, service managers and commissioners to gather quantitative and qualitative data about service provision and outcomes. A third phase will synthesise and refine the results through consensus workshops.

Ethics and dissemination

The first survey phase has university ethics approval and the second phase, Integrated Research Application System (IRAS) and Health Research Authority (HRA) approval (IRAS ID:205986, REC:17/LO/0880); the third phase does not require ethics approval. Dissemination will be facilitated by project coapplicants with established connections to national policy-making forums, in addition to publications, conference presentations and reports targeted to service providers and commissioners.

Item Type: Article
Divisions : Faculty of Health and Medical Sciences > School of Biosciences and Medicine
Authors :
NameEmailORCID
Butler, Claire
Brigden, Charlotte
Gage, HeatherH.Gage@surrey.ac.uk
Williams, Peter
Holdsworth, Laura
Greene, Kay
Wee, Bee
Barclay, Stephen
Wilson, Patricia
Date : 16 May 2018
DOI : 10.1136/bmjopen-2017-021192
Copyright Disclaimer : This is an Open Access article distributed in accordance with the terms of the Creative Commons Attribution (CC BY 4.0) license, which permits others to distribute, remix, adapt and build upon this work, for commercial use, provided the original work is properly cited. See: http:// creativecommons. org/ licenses/ by/ 4. 0/ © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted.
Depositing User : Clive Harris
Date Deposited : 17 Jul 2018 07:46
Last Modified : 17 Jul 2018 07:46
URI: http://epubs.surrey.ac.uk/id/eprint/848722

Actions (login required)

View Item View Item

Downloads

Downloads per month over past year


Information about this web site

© The University of Surrey, Guildford, Surrey, GU2 7XH, United Kingdom.
+44 (0)1483 300800