University of Surrey

Test tubes in the lab Research in the ATI Dance Research

Understanding sleep among children with Cerebral Palsy, their siblings and parents : a qualitative multi-perspectives study of the social context of family sleep.

Underhill, Jessica M. (2018) Understanding sleep among children with Cerebral Palsy, their siblings and parents : a qualitative multi-perspectives study of the social context of family sleep. Doctoral thesis, University of Surrey.

[img]
Preview
Text
JUnderhill PhD Sleep and Cerebral Palsy Feb2018.pdf - Version of Record
Available under License Creative Commons Attribution Non-commercial Share Alike.

Download (6MB) | Preview

Abstract

Children with Cerebral Palsy (CP) account for the largest group of children with a physical disability in the UK. Despite evidence that sleeplessness occurs commonly in children with CP, there is little in-depth research on their sleep. Previous research has relied on the viewpoints of parents, mainly mothers. No research has explored sleep from multiple family members’ perspectives within the same family. This study explores the meanings, organisation and practice of sleep for children with CP, their siblings and their parents. This qualitative study of 10 families involves 10 children with CP (aged 6-13 years), 7 siblings (from 5 families) and 17 parents. Influenced by existing literature on involving disabled children in research, qualitative semi-structured interviews are supplemented by data from children’s self-directed photography and sleep questionnaires, 2 week sleep diaries and actigraphy for all participants. Findings emphasise the importance of the social and family context of sleep. For children, the bedtime routine was significant with reference to their practice of sleep and differences were highlighted dependent on age and severity of CP. Night-time interactions with parents were important for children with severe CP experiencing sleeplessness. For some children, the use and location of their bedrooms enabled the attainment of privacy and autonomy. However, differences, regarding these factors, were found between children with severe CP and those without. Night-time parental monitoring of children with severe CP was common but methods differed depending on a number of intersecting factors including severity of the child’s CP, location of bedrooms and co-existing health issues. Different methods of monitoring had varying degrees of impact on parents’ sleep and on privacy for the child with CP. Co-sleeping was engaged in by a small number of parents with their disabled child at specific times and used as a strategy to protect the sleep of family members.

Item Type: Thesis (Doctoral)
Divisions : Theses
Authors :
NameEmailORCID
Underhill, Jessica M.
Date : 28 February 2018
Funders : N/A
Contributors :
ContributionNameEmailORCID
http://www.loc.gov/loc.terms/relators/THSArber, SaraS.Arber@surrey.ac.uk
http://www.loc.gov/loc.terms/relators/THSMeadows, RobertR.Meadows@surrey.ac.uk
Depositing User : Jessica Underhill
Date Deposited : 05 Mar 2018 08:54
Last Modified : 09 Nov 2018 16:39
URI: http://epubs.surrey.ac.uk/id/eprint/845797

Actions (login required)

View Item View Item

Downloads

Downloads per month over past year


Information about this web site

© The University of Surrey, Guildford, Surrey, GU2 7XH, United Kingdom.
+44 (0)1483 300800