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Ambulatory oxygen: Why do COPD patients not use their portable systems as prescribed? A qualitative study

Arnold, E, Bruton, A, Donovan-Hall, M, Fenwick, A, Dibb, B and Walker, E (2011) Ambulatory oxygen: Why do COPD patients not use their portable systems as prescribed? A qualitative study BMC Pulmonary Medicine, 11.

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Abstract

Background: Patients with COPD on long term oxygen therapy frequently do not adhere to their prescription, and they frequently do not use their ambulatory oxygen systems as intended. Reasons for this lack of adherence are not known. The aim of this study was to obtain in-depth information about perceptions and use of prescribed ambulatory oxygen systems from patients with COPD to inform ambulatory oxygen design, prescription and management.Methods: A qualitative design was used, involving semi-structured face-to-face interviews informed by a grounded theory approach. Twenty-seven UK community-dwelling COPD patients using NHS prescribed ambulatory systems were recruited. Ambulatory oxygen systems comprised cylinders weighing 3.4 kg, a shoulder bag and nasal cannulae.Results: Participants reported that they: received no instruction on how to use ambulatory oxygen; were uncertain of the benefits; were afraid the system would run out while they were using it (due to lack of confidence in the cylinder gauge); were embarrassed at being seen with the system in public; and were unable to carry the system because of the cylinder weight. The essential role of carers was also highlighted, as participants with no immediate carers did not use ambulatory oxygen outside the house.Conclusions: These participants highlighted previously unreported problems that prevented them from using ambulatory oxygen as prescribed. Our novel findings point to: concerns with the lack of specific information provision; the perceived unreliability of the oxygen system; important carer issues surrounding managing and using ambulatory oxygen equipment. All of these issues, as well as previously reported problems with system weight and patient embarrassment, should be addressed to improve adherence to ambulatory oxygen prescription and enhance the physical and social benefits of maintaining mobility in this patient group. Increased user involvement in both system development and service provision planning, could have avoided many of the difficulties highlighted by this study. © 2011 Arnold et al; licensee BioMed Central Ltd.

Item Type: Article
Authors :
NameEmailORCID
Arnold, EUNSPECIFIEDUNSPECIFIED
Bruton, AUNSPECIFIEDUNSPECIFIED
Donovan-Hall, MUNSPECIFIEDUNSPECIFIED
Fenwick, AUNSPECIFIEDUNSPECIFIED
Dibb, Bb.dibb@surrey.ac.ukUNSPECIFIED
Walker, EUNSPECIFIEDUNSPECIFIED
Date : 2011
Identification Number : https://doi.org/10.1186/1471-2466-11-9
Uncontrolled Keywords : adult, aged, ambulatory oxygen system, article, chronic obstructive lung disease, clinical article, controlled study, female, grounded theory, health care planning, human, interview, long term care, male, nasogastric tube, oxygen therapy, portable equipment, prescription, qualitative research, United Kingdom, ambulatory care, emotion, health survey, middle aged, patient compliance, patient education, psychological aspect, treatment outcome, utilization review, Aged, Aged, 80 and over, Ambulatory Care, Emotions, Female, Health Surveys, Humans, Male, Middle Aged, Oxygen Inhalation Therapy, Patient Compliance, Patient Education as Topic, Pulmonary Disease, Chronic Obstructive, Treatment Outcome
Related URLs :
Depositing User : Symplectic Elements
Date Deposited : 17 May 2017 10:45
Last Modified : 17 May 2017 14:52
URI: http://epubs.surrey.ac.uk/id/eprint/829120

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