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Measuring quality of life in children and young people after transplantation: methodological considerations.

Taylor, RM, Wray, J and Gibson, F (2010) Measuring quality of life in children and young people after transplantation: methodological considerations. Pediatr Transplant, 14 (4). pp. 445-458.

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Abstract

The measurement of QoL has become an important area for research in paediatric transplantation over the past 15 yr. While much of this work remains descriptive and exploratory, advances in treatment and the trend towards outcomes being patient centred and not just survival based suggest the measurement of QoL will be of far more importance and relevance in the future. In this discussion article, we will outline some of the issues that need to be considered when embarking on a QoL study. The aim of our account is not to be prescriptive, rather to present researchers and clinicians with questions and possible solutions to help increase the scientific robustness of future studies. We have included summary tables of instruments that are currently available as a resource for those wanting to evaluate QoL in paediatric transplantation.

Item Type: Article
Authors :
NameEmailORCID
Taylor, RMUNSPECIFIEDUNSPECIFIED
Wray, JUNSPECIFIEDUNSPECIFIED
Gibson, Ff.gibson@surrey.ac.ukUNSPECIFIED
Date : June 2010
Identification Number : https://doi.org/10.1111/j.1399-3046.2010.01316.x
Uncontrolled Keywords : Adolescent, Child, Humans, Organ Transplantation, Pediatrics, Quality of Life, Surveys and Questionnaires
Related URLs :
Depositing User : Symplectic Elements
Date Deposited : 17 May 2017 10:45
Last Modified : 17 May 2017 14:52
URI: http://epubs.surrey.ac.uk/id/eprint/829075

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