University of Surrey

Test tubes in the lab Research in the ATI Dance Research

'Just an unfortunate coincidence': children's understanding of haemophilia genetics and inheritance.

Khair, K, Gibson, F and Meerabeau, L (2011) 'Just an unfortunate coincidence': children's understanding of haemophilia genetics and inheritance. Haemophilia, 17 (3). pp. 470-475.

Full text not available from this repository.

Abstract

This paper presents the results of a study talking to children and young people affected with severe haemophilia A and/or haemophilia B about their knowledge and understanding of genetics and inheritance. These data were gathered in a qualitative study using semi-structured interviews with thirty boys aged four to sixteen discussing the impact of haemophilia on their lives. Responses were tape recorded, transcribed and analysed, using thematic analysis; one of the themes identified was genetic knowledge which is presented in this paper. Genetic knowledge was formed within the context of normal day-to-day lives within families affected by haemophilia, with parents and haemophilia centre staff being sources of information about individual inheritance patterns as well as providers of information about the future genetic impact of having haemophilia.

Item Type: Article
Authors :
NameEmailORCID
Khair, KUNSPECIFIEDUNSPECIFIED
Gibson, Ff.gibson@surrey.ac.ukUNSPECIFIED
Meerabeau, LUNSPECIFIEDUNSPECIFIED
Date : May 2011
Identification Number : https://doi.org/10.1111/j.1365-2516.2010.02448.x
Uncontrolled Keywords : Adolescent, Child, Child, Preschool, Comprehension, Genetic Predisposition to Disease, Health Knowledge, Attitudes, Practice, Hemophilia A, Hemophilia B, Humans, Male, Surveys and Questionnaires
Related URLs :
Depositing User : Symplectic Elements
Date Deposited : 17 May 2017 10:45
Last Modified : 17 May 2017 14:52
URI: http://epubs.surrey.ac.uk/id/eprint/829073

Actions (login required)

View Item View Item

Downloads

Downloads per month over past year


Information about this web site

© The University of Surrey, Guildford, Surrey, GU2 7XH, United Kingdom.
+44 (0)1483 300800