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Quality and efficacy of educational materials on cancer-related fatigue: views of patients from two European countries.

Ream, E, Browne, N, Glaus, A, Knipping, C and Frei, IA (2003) Quality and efficacy of educational materials on cancer-related fatigue: views of patients from two European countries. Eur J Oncol Nurs, 7 (2). pp. 99-109.

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Abstract

Cancer-related fatigue is a symptom with great implications for the quality of life of those that experience it. It is regarded as one of the most distressing symptoms that people with cancer develop. Its aetiology is complex, and although the mechanisms underlying fatigue have not been fully clarified it is evident that it is exacerbated by treatments intended to cure or palliate the disease. Patients at risk of cancer-related fatigue need access to information that will enable them to manage it effectively. There are a growing number of materials available to patients in different European countries on this topic, but it is unclear how useful patients find these. This study was undertaken to explore this through conducting focus groups with patients in the United Kingdom and Switzerland. One focus group was conducted in each country. Findings from these determined that individuals voiced common concerns: fatigue had not been addressed in the clinical setting - individuals surmised why this occurred; participants had not accessed materials on cancer-related fatigue previously; they made recommendations for future resources for patients. However, what was evident was that unless patients can access materials on this topic, their quality becomes purely an academic issue.

Item Type: Article
Authors :
NameEmailORCID
Ream, Ee.ream@surrey.ac.ukUNSPECIFIED
Browne, NUNSPECIFIEDUNSPECIFIED
Glaus, AUNSPECIFIEDUNSPECIFIED
Knipping, CUNSPECIFIEDUNSPECIFIED
Frei, IAUNSPECIFIEDUNSPECIFIED
Date : June 2003
Uncontrolled Keywords : Comorbidity, Fatigue, Female, Focus Groups, Great Britain, Health Knowledge, Attitudes, Practice, Humans, Male, Multicenter Studies as Topic, Neoplasms, Nurse's Role, Oncology Nursing, Patient Education as Topic, Quality of Health Care, Risk Assessment, Sampling Studies, Severity of Illness Index, Switzerland, Teaching Materials
Related URLs :
Depositing User : Symplectic Elements
Date Deposited : 17 May 2017 10:35
Last Modified : 17 May 2017 14:51
URI: http://epubs.surrey.ac.uk/id/eprint/828408

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