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Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management

Foster, C, Calman, L, Grimmett, C, Breckons, M, Cotterell, P, Yardley, L, Joseph, J, Hughes, S, Jones, R, Leonidou, C , Armes, Jo, Batehup, L, Corner, J, Fenlon, D, Lennan, E, Morris, C, Neylon, A, Ream, E, Turner, L and Richardson, A (2015) Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management Psycho-Oncology, 24 (8). pp. 940-949.

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Abstract

Objective The aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment.

Methods A nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.

Results Key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.

Conclusions It is feasible to systematically ‘co-create’ an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted. Copyright © 2015 John Wiley & Sons, Ltd.

Item Type: Article
Divisions : Faculty of Health and Medical Sciences > School of Health Sciences
Authors :
NameEmailORCID
Foster, CUNSPECIFIEDUNSPECIFIED
Calman, LUNSPECIFIEDUNSPECIFIED
Grimmett, CUNSPECIFIEDUNSPECIFIED
Breckons, MUNSPECIFIEDUNSPECIFIED
Cotterell, PUNSPECIFIEDUNSPECIFIED
Yardley, LUNSPECIFIEDUNSPECIFIED
Joseph, JUNSPECIFIEDUNSPECIFIED
Hughes, SUNSPECIFIEDUNSPECIFIED
Jones, RUNSPECIFIEDUNSPECIFIED
Leonidou, CUNSPECIFIEDUNSPECIFIED
Armes, Jojo.armes@surrey.ac.ukUNSPECIFIED
Batehup, LUNSPECIFIEDUNSPECIFIED
Corner, JUNSPECIFIEDUNSPECIFIED
Fenlon, DUNSPECIFIEDUNSPECIFIED
Lennan, EUNSPECIFIEDUNSPECIFIED
Morris, CUNSPECIFIEDUNSPECIFIED
Neylon, AUNSPECIFIEDUNSPECIFIED
Ream, Ee.ream@surrey.ac.ukUNSPECIFIED
Turner, LUNSPECIFIEDUNSPECIFIED
Richardson, AUNSPECIFIEDUNSPECIFIED
Date : 1 August 2015
Identification Number : 10.1002/pon.3747
Copyright Disclaimer : Copyright © 2015 John Wiley & Sons, Ltd.
Uncontrolled Keywords : Science & Technology; Social Sciences; Life Sciences & Biomedicine; Oncology; Psychology; Psychology; Multidisciplinary; Social Sciences; Biomedical; Biomedical Social Sciences; RANDOMIZED CONTROLLED-TRIAL; BREAST-CANCER; SURVIVORS; INTERVENTION EFFICACY; HEALTH; PROVISION; PROGRAM; MODEL
Depositing User : Symplectic Elements
Date Deposited : 17 May 2017 10:28
Last Modified : 07 Dec 2017 08:55
URI: http://epubs.surrey.ac.uk/id/eprint/827922

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