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The lived experience of patients with pleural mesothelioma.

Hughes, N and Arber, A (2008) The lived experience of patients with pleural mesothelioma. Int J Palliat Nurs, 14 (2). pp. 66-71.

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This paper reports on a research study of five patients diagnosed with mesothelioma. The study used a phenomenological approach to explore patients' lived experience using in-depth interviews. The findings identify that patients have many unmet psychosocial and emotional needs and that there was a lack of information provided to patients about specialist supportive and palliative care services. A number of the patients found specialist supportive care by chance rather than by referral. In addition, patients were involved in complex medico-legal matters in relation to asbestos exposure, and this was an additional burden for them and their spouse or carer. A feeling of social isolation was also reported and a number of patients would welcome the opportunity to meet with other people in the same situation as themselves. In conclusion, there is a lack of attention to the emotional needs of this group of patients, which means that supportive care resources are not being accessed in a timely and flexible manner.

Item Type: Article
Divisions : Surrey research (other units)
Authors :
Hughes, N
Date : February 2008
Uncontrolled Keywords : Humans, Mesothelioma, Palliative Care, Pleural Neoplasms
Depositing User : Symplectic Elements
Date Deposited : 17 May 2017 09:06
Last Modified : 24 Jan 2020 16:02

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