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Psychosocial wellbeing and health-related quality of life in a UK population with Usher syndrome

Dean, G, Orford, A, Staines, R, McGee, A and Smith, Kimberley (2017) Psychosocial wellbeing and health-related quality of life in a UK population with Usher syndrome BMJ Open, 7 (1), e013261.

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Abstract

Objectives: To determine whether psychosocial wellbeing is associated with the health-related quality of life (HRQOL) of people with Usher syndrome. Setting: The survey was advertised online and through deafblind-related charities, support groups and social groups throughout the UK. Participants: 90 people with Usher syndrome took part in the survey. Inclusion criteria are having a diagnosis of Usher syndrome, being 18 or older and being a UK resident. Primary and secondary outcome measures: All participants took part in a survey that measured depressive symptoms, loneliness and social support ( predictors) and their physical and mental HRQOL (outcomes). Measured confounders included agerelated, sex-related and health-related characteristics. Hierarchical multiple linear regression analyses examined the association of each psychosocial wellbeing predictor with the physical and mental HRQOL outcomes while controlling for confounders in a stepwise manner. Results: After adjusting for all confounders, psychosocial well-being was shown to predict physical and mental HRQOL in our population with Usher syndrome. Increasing depressive symptoms were predictive of poorer physical (β=−0.36, p<0.01) and mental (β=−0.60, p<0.001) HRQOL. Higher levels of loneliness predicted poorer mental HRQOL (β=−0.20, p<0.05). Finally, increasing levels of social support predicted better mental HRQOL (β=0.19, p<0.05). Conclusions: Depression, loneliness and social support all represent important issues that are linked with HRQOL in a UK population with Usher syndrome. Our results add to the growing body of evidence that psychosocial well-being is an important factor to consider in people with Usher syndrome alongside functional and physical impairment within research and clinical practice.

Item Type: Article
Subjects : Psychology
Divisions : Faculty of Health and Medical Sciences > School of Psychology
Authors :
NameEmailORCID
Dean, GUNSPECIFIEDUNSPECIFIED
Orford, AUNSPECIFIEDUNSPECIFIED
Staines, RUNSPECIFIEDUNSPECIFIED
McGee, AUNSPECIFIEDUNSPECIFIED
Smith, Kimberleykimberley.j.smith@surrey.ac.ukUNSPECIFIED
Date : 12 January 2017
Identification Number : 10.1136/bmjopen-2016-013261
Copyright Disclaimer : This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work noncommercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http:// creativecommons.org/licenses/by-nc/4.0/
Depositing User : Symplectic Elements
Date Deposited : 18 Jan 2017 11:04
Last Modified : 31 Oct 2017 19:03
URI: http://epubs.surrey.ac.uk/id/eprint/813319

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