University of Surrey

Test tubes in the lab Research in the ATI Dance Research

Pay More Attention: A national mixed methods study to identify the barriers and facilitators to ensuring equal access to high quality hospital care and services for children and young people with and without learning disabilities and their families.

Oulton, K, Wray, J, Carr, L, Hassiotis, H, Jewitt, C, Kerry, S, Tuffrey-Wijne, I and Gibson, Faith (2017) Pay More Attention: A national mixed methods study to identify the barriers and facilitators to ensuring equal access to high quality hospital care and services for children and young people with and without learning disabilities and their families. BMC Open, 6 (12), e012333.

[img]
Preview
Text
e012333.full.pdf - Version of Record

Download (1MB) | Preview
[img]
Preview
Text (licence)
SRI_deposit_agreement.pdf
Available under License : See the attached licence file.

Download (33kB) | Preview
[img] Text
Oulton et al_BMJ Open Accepted Author Version_11-11-16.docx - Accepted version Manuscript
Restricted to Repository staff only
Available under License : See the attached licence file.

Download (76kB)

Abstract

Introduction Despite evidence of health inequalities for adults with intellectual disability (ID) there has yet to be a comprehensive review of how well hospital services are meeting the needs of children and young people (CYP) with ID and their families. We do not know how relevant existing recommendations and guidelines are to CYP, whether these are being applied in the paediatric setting or what difference they are making. Evidence of parental dissatisfaction with the quality, safety and accessibility of hospital care for CYP with ID exists. However, the extent to which their experience differs from parents of CYP without ID is not known and the views and experiences of CYP with ID have not been investigated. We will compare how services are delivered to, and experienced by CYP aged 5-15 years with and without ID and their families to see what inequalities exist, for whom, why and under what circumstances. Methods and analysis We will use a transformative, mixed methods case study design to collect data over four consecutive phases. We will involve CYP, parents and hospital staff using a range of methods; interviews, parental electronic diary, hospital and community staff questionnaire, patient and parent satisfaction questionnaire, content analysis of hospital documents and a retrospective mapping of patient hospital activity. Qualitative data will be managed and analysed using NViVo and quantitative data will be analysed using parametric and non-parametric descriptive statistics.

Item Type: Article
Subjects : Health Sciences
Divisions : Faculty of Health and Medical Sciences > School of Health Sciences
Authors :
NameEmailORCID
Oulton, KUNSPECIFIEDUNSPECIFIED
Wray, JUNSPECIFIEDUNSPECIFIED
Carr, LUNSPECIFIEDUNSPECIFIED
Hassiotis, HUNSPECIFIEDUNSPECIFIED
Jewitt, CUNSPECIFIEDUNSPECIFIED
Kerry, SUNSPECIFIEDUNSPECIFIED
Tuffrey-Wijne, IUNSPECIFIEDUNSPECIFIED
Gibson, Faithf.gibson@surrey.ac.ukUNSPECIFIED
Date : 18 November 2017
Identification Number : 10.1136/bmjopen-2016-012333
Copyright Disclaimer : This article was published in BMJ Open following peer review and can also be viewed on the journal’s website at http://bmjopen.bmj.com. This is an Open Access article distributed in accordance with the terms of the Creative Commons Attribution (CC BY 4.0) license, which permits others to distribute, remix, adapt and build upon this work, for commercial use, provided the original work is properly cited. See: http://creativecommons.org/licenses/by/4.0/
Uncontrolled Keywords : : Learning disability, Intellectual disability, Long-term conditions, Mixed methods, Hospital, Health services research.
Related URLs :
Depositing User : Symplectic Elements
Date Deposited : 18 Nov 2016 16:29
Last Modified : 06 Jun 2017 13:14
URI: http://epubs.surrey.ac.uk/id/eprint/812909

Actions (login required)

View Item View Item

Downloads

Downloads per month over past year


Information about this web site

© The University of Surrey, Guildford, Surrey, GU2 7XH, United Kingdom.
+44 (0)1483 300800