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From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research.

Vindrola-Padros, C, Martins, A, Coyne, I, Bryan, G and Gibson, F (2016) From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research. Glob Public Health, 11 (5-6). pp. 636-650.

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Abstract

Research with young people suffering from a long-term illness has more recently incorporated the use of visual methods to foster engagement of research participants from a wide age range, capture the longitudinal and complex factors involved in young people's experiences of care, and allow young people to express their views in multiple ways. Despite its contributions, these methods are not always easy to implement and there is a possibility that they might not generate the results or engagement initially anticipated by researchers. We hope to expand on the emerging discussion on the use of participatory visual methods by presenting the practical issues we have faced while using this methodology during different stages of research: informed assent/consent, data collection, and the dissemination of findings. We propose a combination of techniques to make sure that the research design is flexible enough to allow research participants to shape the research process according to their needs and interests.

Item Type: Article
Subjects : Biosciences
Divisions : Faculty of Health and Medical Sciences > School of Biosciences and Medicine
Authors :
AuthorsEmailORCID
Vindrola-Padros, CUNSPECIFIEDUNSPECIFIED
Martins, AUNSPECIFIEDUNSPECIFIED
Coyne, IUNSPECIFIEDUNSPECIFIED
Bryan, GUNSPECIFIEDUNSPECIFIED
Gibson, FUNSPECIFIEDUNSPECIFIED
Date : 11 April 2016
Identification Number : 10.1080/17441692.2016.1165718
Copyright Disclaimer : This is an Accepted Manuscript of an article published by Taylor & Francis in Global Public Health in May 2016, available online: http://www.tandfonline.com/10.1080/17441692.2016.1165718
Uncontrolled Keywords : Participatory research, long-term illness, visual methods, young people
Related URLs :
Additional Information : Full text not available from this repository.
Depositing User : Symplectic Elements
Date Deposited : 07 Jun 2016 17:14
Last Modified : 07 Jun 2016 17:14
URI: http://epubs.surrey.ac.uk/id/eprint/810965

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