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Information-sharing between healthcare professionals, parents and children with cancer: more than a matter of information exchange.

Coyne, I, Amory, A, Gibson, F and Kiernan, G (2016) Information-sharing between healthcare professionals, parents and children with cancer: more than a matter of information exchange. Eur J Cancer Care (Engl), 25 (1). pp. 141-156.

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Abstract

This study examined participants' views on children's participation in information-sharing and communication interactions. A descriptive qualitative approach was taken with individual interviews held with children (The term 'children' is used to denote both children and adolescents and to avoid cumbersome repetition.) aged 7-16 years (n = 20), their parents (n = 22) and healthcare professionals (n = 40) at a children's hospital in Ireland. Data were analysed using the constant comparative method and managed with NVivo (version 8). The findings indicate that professionals strongly supported an open and honest approach to information-sharing; however, this viewpoint was not shared by all parents. The need to maintain hope and spirit and promote an optimistic identity influenced the amount and type of information shared by parents. Children trusted their parents to share information, and valued their parents' role as interpreters of information, advocates, and communication buffers. Most professionals endorsed parents' primacy as managers of information but experienced difficulty navigating a restricted stance. This study adds important insights into the complexities of information-sharing in triadic encounters. Professionals need to maintain an open mind about information-sharing strategies families may choose, remain sensitive to parents and children's information requirements and adopt a flexible approach to information provision.

Item Type: Article
Subjects : Biosciences
Divisions : Faculty of Health and Medical Sciences > School of Biosciences and Medicine
Authors :
AuthorsEmailORCID
Coyne, IUNSPECIFIEDUNSPECIFIED
Amory, AUNSPECIFIEDUNSPECIFIED
Gibson, FUNSPECIFIEDUNSPECIFIED
Kiernan, GUNSPECIFIEDUNSPECIFIED
Date : January 2016
Identification Number : 10.1111/ecc.12411
Copyright Disclaimer : This is the peer reviewed version of the following article: Coyne I., Amory A., Gibson F. & Kiernan G. (2015) European Journal of Cancer Care 25, 141–156 Information-sharing between healthcare professionals, parents and children with cancer: more than a matter of information exchange, which has been published in final form at http://dx.doi.org/10.1111/ecc.12411. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving
Uncontrolled Keywords : childhood cancer, communication, family, health professionals, information, qualitative
Related URLs :
Additional Information : Full text not available from this repository.
Depositing User : Symplectic Elements
Date Deposited : 07 Jun 2016 17:04
Last Modified : 07 Jun 2016 17:04
URI: http://epubs.surrey.ac.uk/id/eprint/810963

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