University of Surrey

Test tubes in the lab Research in the ATI Dance Research

Transition From Child to Adult Care--'It's Not a One-Off Event': Development of Benchmarks to Improve the Experience.

Aldiss, S, Ellis, J, Cass, H, Pettigrew, T, Rose, L and Gibson, F (2015) Transition From Child to Adult Care--'It's Not a One-Off Event': Development of Benchmarks to Improve the Experience. J Pediatr Nurs, 30 (5). pp. 638-647.

PDF (licence)
Available under License : See the attached licence file.

Download (33kB) | Preview


The transition from child to adult services is a crucial time in the health of young people who may potentially fall into a poorly managed 'care gap'. A multi-site, multi-staged study was undertaken to identify the key aspects of a transitional programme of care for young people. Through a process of mapping, which involved drawing on primary and secondary data, a clinical practice-benchmark tool was developed. Benchmarks are a health care quality performance measurement 'tool'. They provide clinical teams with standards that services can measure themselves against to see how they are doing. They are used in a comparing and sharing activity, using a structured and systematic approach, to share best practice. They offer a mechanism to look at processes, and provide an opportunity to analyse skills and attitudes, which may be the hidden narrative in benchmarking. This paper describes steps in the development of benchmarks for transition to adult care, often associated with low patient and family satisfaction. Qualitative data were collected through focus groups, workshops and interviews from 13 young people with long-term health conditions, 11 parents, 36 professionals and 21 experts leading on transition within the United Kingdom. Transcripts were analysed using qualitative content analysis. For young people and their parents/carers to experience timely and effective transition, eight factors and their associated indicators of best practice were developed from the primary and secondary data and refined through an iterative process. We recommend their use to clinical teams to inform system level strategies as well as evaluation programmes.

Item Type: Article
Subjects : Biosciences
Divisions : Faculty of Health and Medical Sciences > School of Biosciences and Medicine
Authors :
Date : September 2015
Identification Number : 10.1016/j.pedn.2015.05.020
Copyright Disclaimer : © 2015. This manuscript version is made available under the CC-BY-NC-ND 4.0 license
Uncontrolled Keywords : Adolescents, Benchmarking, Long-term conditions, Quality improvement, Transition, Young adults
Related URLs :
Additional Information : Full text not available from this repository.
Depositing User : Symplectic Elements
Date Deposited : 07 Jun 2016 16:22
Last Modified : 07 Jun 2016 16:22

Actions (login required)

View Item View Item


Downloads per month over past year

Information about this web site

© The University of Surrey, Guildford, Surrey, GU2 7XH, United Kingdom.
+44 (0)1483 300800