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Individualizing hospital care for children and young people with learning disabilities: it's the little things that make the difference.

Oulton, K, Sell, D, Kerry, S and Gibson, F (2015) Individualizing hospital care for children and young people with learning disabilities: it's the little things that make the difference. J Pediatr Nurs, 30 (1). pp. 78-86.

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Abstract

This ethnographic study sought parent, patient and staff views about the needs of children and young people with learning disability and their families during hospitalization. Reported here are data from 27 staff. The need for individualized care was identified, based on gaining appropriate experience and training, identifying the population, focussing on the "little things", creating a safe, familiar environment and accessing and using appropriate resources. Parents played a central role in staff's delivery of individualized care. A lack of staff experience, knowledge and communication about learning disability can mean they rely on parent's input rather than forming a true partnership with them.

Item Type: Article
Subjects : Biosciences
Divisions : Faculty of Health and Medical Sciences > School of Biosciences and Medicine
Authors :
AuthorsEmailORCID
Oulton, KUNSPECIFIEDUNSPECIFIED
Sell, DUNSPECIFIEDUNSPECIFIED
Kerry, SUNSPECIFIEDUNSPECIFIED
Gibson, FUNSPECIFIEDUNSPECIFIED
Date : January 2015
Identification Number : 10.1016/j.pedn.2014.10.006
Copyright Disclaimer : © 2015. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/
Uncontrolled Keywords : Children and young people, Hospital care, Learning disability, Parent–staff relationship, Qualitative research
Related URLs :
Additional Information : Full text not available from this repository.
Depositing User : Symplectic Elements
Date Deposited : 07 Jun 2016 14:28
Last Modified : 07 Jun 2016 14:28
URI: http://epubs.surrey.ac.uk/id/eprint/810955

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