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Multimethodology research with boys with severe haemophilia.

Khair, K, Collier, C, Meerabeau, L and Gibson, F (2013) Multimethodology research with boys with severe haemophilia. Nurse Res, 20 (6). pp. 40-44.

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Abstract

AIM: To describe the use of an innovative, multimethodological approach to exploring the day-to-day experiences of boys across a wide age range to better understand the effects of modern haemophilia treatment on their lives. BACKGROUND: Children and young people with severe haemophilia can now be treated with prophylaxis and potentially have a lifestyle close to that of those without haemophilia. However, boys frequently describe living with haemophilia as burdensome. DATA SOURCES: The study, based on a grounded theory approach, was conducted with boys aged four to 16 years old, using research methods that included photo-elicitation, 'draw and write' techniques, focus groups run by participant co-researchers and individual interviews. REVIEW METHODS: Grounded theory was used to enable rich data capture, through reshaping of research questions as theory developed. DISCUSSION: The effectiveness of the methods used is discussed, along with consideration of the issues raised. CONCLUSION: These methods are effective for use with children. They can result in robust data and are also fun for child participants. IMPLICATIONS FOR RESEARCH/PRACTICE: Understanding life with chronic disease from a child's perspective can improve clinical care through a better understanding of health behaviour and lifestyle implications.

Item Type: Article
Subjects : Biosciences
Divisions : Faculty of Health and Medical Sciences > School of Biosciences and Medicine
Authors :
AuthorsEmailORCID
Khair, KUNSPECIFIEDUNSPECIFIED
Collier, CUNSPECIFIEDUNSPECIFIED
Meerabeau, LUNSPECIFIEDUNSPECIFIED
Gibson, FUNSPECIFIEDUNSPECIFIED
Date : July 2013
Copyright Disclaimer : Copyright RCN Publishing Company Jul 2013. This is not the version of record.
Uncontrolled Keywords : Adolescent, Child, Child, Preschool, Focus Groups, Hemophilia A, Humans, Interviews as Topic, Male, Nursing Methodology Research, Psychology, Adolescent, Psychology, Child, Severity of Illness Index
Related URLs :
Additional Information : Full text not available from this repository.
Depositing User : Symplectic Elements
Date Deposited : 07 Jun 2016 13:47
Last Modified : 07 Jun 2016 13:47
URI: http://epubs.surrey.ac.uk/id/eprint/810948

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