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"Your Place or Mine?" Priorities for a Specialist Teenage and Young Adult (TYA) Cancer Unit: Disparity Between TYA and Professional Perceptions.

Taylor, RM, Fern, L, Whelan, J, Pearce, S, Grew, T, Millington, H, Ashton, J, Brooman, K, Starkey, C and Gibson, F (2011) "Your Place or Mine?" Priorities for a Specialist Teenage and Young Adult (TYA) Cancer Unit: Disparity Between TYA and Professional Perceptions. J Adolesc Young Adult Oncol, 1 (3). pp. 145-151.

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Abstract

PURPOSE: To identify key components of a specialist teenager and young adult (TYA) cancer unit from the perspective of young people and health professionals. PATIENTS AND METHODS: A facilitated workshop was held in England at which participants prioritized 15 core features of a specialist cancer unit identified in a literature review. Themes were transferred onto cards and organized using a pyramid. Notes were made of the discussion and how decisions were reached. The exercise was repeated in a survey at a patient conference. Data were analyzed by weighting the ranked position and by content analysis. RESULTS: Eleven young people and 22 health professionals attended the workshops, and 64 young people completed the survey. Young people's top three priorities were a dedicated unit, contact with peers, and provision for partners/parents to live in the unit with them. Health professionals prioritized best chance of survival and best quality of life, access to expertise, access to computers/Internet, and age-appropriate equipment. CONCLUSIONS: Priorities varied across and within healthcare professionals and young people, and were dependent on viewpoint and personal experience. This is an essential first step toward a fuller description of the benefit of specialist TYA cancer services and highlights the importance of consulting users in service development.

Item Type: Article
Subjects : Biosciences
Divisions : Faculty of Health and Medical Sciences > School of Biosciences and Medicine
Authors :
AuthorsEmailORCID
Taylor, RMUNSPECIFIEDUNSPECIFIED
Fern, LUNSPECIFIEDUNSPECIFIED
Whelan, JUNSPECIFIEDUNSPECIFIED
Pearce, SUNSPECIFIEDUNSPECIFIED
Grew, TUNSPECIFIEDUNSPECIFIED
Millington, HUNSPECIFIEDUNSPECIFIED
Ashton, JUNSPECIFIEDUNSPECIFIED
Brooman, KUNSPECIFIEDUNSPECIFIED
Starkey, CUNSPECIFIEDUNSPECIFIED
Gibson, FUNSPECIFIEDUNSPECIFIED
Date : September 2011
Identification Number : 10.1089/jayao.2011.0037
Copyright Disclaimer : Final publication is available from Mary Ann Liebert, Inc., publishers http://dx.doi.org/10.1089/jayao.2011.0037
Related URLs :
Additional Information : Full text not available from this repository.
Depositing User : Symplectic Elements
Date Deposited : 07 Jun 2016 12:59
Last Modified : 07 Jun 2016 12:59
URI: http://epubs.surrey.ac.uk/id/eprint/810942

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