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'Not wanting to upset' : the management of emotions in caring for the dying : an ethnographic study in Addis Ababa, Ethiopia.

Ayers, Nicola (2015) 'Not wanting to upset' : the management of emotions in caring for the dying : an ethnographic study in Addis Ababa, Ethiopia. Doctoral thesis, University of Surrey.

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Abstract

Ethiopia, one of the poorest countries in the developing world, has limited resources for those with advanced cancer requiring end of life care. This thesis explores the care of the dying situation in Addis Ababa, as families access palliative care services. A critical review examined palliative care set-up in sub-Saharan Africa and the Middle East and explored models of care used and the multiple factors affecting palliative care delivery. The review revealed a dearth of knowledge about care of the dying in Addis Ababa. A further review provided insight into cultural aspects of good death. A focused ethnography, carried out over a 6-month period at a hospice facility, involved participant observation, interviews and home visits with staff, patients and family. Following thematic analysis a number of significant themes were revealed. The importance of emotional support by family and hospice staff was found to be the essence of care provision. The awareness of a terminal diagnosis is often kept from the ill person so as ‘not to upset’, thus protecting them emotionally from distress. Various communication strategies were used by staff to create openness, though ultimately they deferred to the dying person’s family; also family and hospice staff talked ambiguously about dying. Emotional care was expressed by family members ‘stopping everything’ to care for their dying relative. Through physical care, the dying person’s emotional equilibrium and comfort were maintained. Hospice staff provided a ‘family-style service’. This study offers unique understanding into non-disclosure of terminal diagnosis and how the family emotionally protects the dying person. It gives valuable insight into how families and the emerging Ethiopian palliative care service together provide care for the dying. The study has implications for international relief workers and professional carers. This study points to further research into care of the dying in rural communities in Ethiopia.

Item Type: Thesis (Doctoral)
Divisions : Theses
Authors :
AuthorsEmailORCID
Ayers, Nicolan.ayers@surrey.ac.ukUNSPECIFIED
Date : 29 May 2015
Funders : Self
Contributors :
ContributionNameEmailORCID
Thesis supervisorVydelingum, Vassov.vydelingum@surrey.ac.ukUNSPECIFIED
Thesis supervisorArber, Annea.arber@surrey.ac.ukUNSPECIFIED
Uncontrolled Keywords : Ethiopia, Truth-telling, Palliative Care, Emotional Labour, Non-Disclosure
Additional Information : I am happy for my thesis to be posted on SRI Open access
Depositing User : Nicola Ayers
Date Deposited : 02 Jun 2015 09:09
Last Modified : 04 Nov 2015 08:44
URI: http://epubs.surrey.ac.uk/id/eprint/807510

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