University of Surrey

Test tubes in the lab Research in the ATI Dance Research

Variant Creutzfeldt-Jakob disease: need for mental health and palliative care team collaboration.

de Vries, K, Sque, M, Bryan, K and Abu-Saad, H (2003) Variant Creutzfeldt-Jakob disease: need for mental health and palliative care team collaboration. Int J Palliat Nurs, 9 (12). pp. 512-520.

[img] PDF
Variant Creutzfeldt-Jakob disease.pdf
Restricted to Repository staff only
Available under License : See the attached licence file.

Download (104kB)
[img] PDF (licence)
SRI_deposit_agreement.pdf
Restricted to Repository staff only

Download (33kB)

Abstract

People with a dementia syndrome and a superimposed terminal illness are increasingly being referred to palliative care services. Creutzfeldt-Jakob disease (CJD) is a dementia syndrome in the early stages of which people experience a variety of psychological symptoms that may lead to them being admitted to psychiatric services. People with CJD have died in psychiatric units. There is clearly a need for collaboration between mental health and palliative care services in providing care for people with CJD and other dementia syndromes. An inductive qualitative study of one case of variant CJD (vCJD) was carried out to explore issues that were raised in providing care for a young person with the disease who had died in a hospice unit. The study, which was a pilot for a larger study, highlights some of the complexities of providing care for people with an end-stage dementia and identifies the need for the development of education initiatives to increase knowledge and understanding of the end-of-life needs of people with CJD and other dementia syndromes, and their families.

Item Type: Article
Authors :
AuthorsEmailORCID
de Vries, KUNSPECIFIEDUNSPECIFIED
Sque, MUNSPECIFIEDUNSPECIFIED
Bryan, KUNSPECIFIEDUNSPECIFIED
Abu-Saad, HUNSPECIFIEDUNSPECIFIED
Date : December 2003
Uncontrolled Keywords : Adaptation, Psychological, Adult, Attitude of Health Personnel, Attitude to Health, Creutzfeldt-Jakob Syndrome, Depressive Disorder, England, Family, Female, Focus Groups, Health Services Needs and Demand, Humans, Infection Control, Mental Health, Nurse's Role, Nursing Methodology Research, Nursing Staff, Hospital, Palliative Care, Pilot Projects, Qualitative Research, Retrospective Studies
Depositing User : Symplectic Elements
Date Deposited : 28 Mar 2017 14:09
Last Modified : 28 Mar 2017 14:09
URI: http://epubs.surrey.ac.uk/id/eprint/722599

Actions (login required)

View Item View Item

Downloads

Downloads per month over past year


Information about this web site

© The University of Surrey, Guildford, Surrey, GU2 7XH, United Kingdom.
+44 (0)1483 300800