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Defining datasets and creating data dictionaries for quality improvement and research in chronic disease using routinely collected data: An ontology-driven approach

de Lusignan, Simon, Jones, S, Liaw, S-T and Michalakidis, Georgios (2012) Defining datasets and creating data dictionaries for quality improvement and research in chronic disease using routinely collected data: An ontology-driven approach Informatics in Primary Care, 19 (3). pp. 127-134.

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Abstract

Background: The burden of chronic disease is increasing, and research and quality improvement will be less effective if case finding strategies are suboptimal. Objective: To describe an ontology-driven approach to case finding in chronic disease and how this approach can be used to create a data dictionary and make the codes used in case finding transparent. Method: A five-step process: (1) identifying a reference coding system or terminology; (2) using an ontology-driven approach to identify cases; (3) developing metadata that can be used to identify the extracted data; (4) mapping the extracted data to the reference terminology; and (5) creating the data dictionary. Results: Hypertension is presented as an exemplar. A patient with hypertension can be represented by a range of codes including diagnostic, history and administrative. Metadata can link the coding system and data extraction queries to the correct data mapping and translation tool, which then maps it to the equivalent code in the reference terminology. The code extracted, the term, its domain and subdomain, and the name of the data extraction query can then be automatically grouped and published online as a readily searchable data dictionary. An exemplar online is: www.clininf.eu/qickd-datadictionary. html Conclusion: Adopting an ontology-driven approach to case finding could improve the quality of disease registers and of research based on routine data. It would offer considerable advantages over using limited datasets to define cases. This approach should be considered by those involved in research and quality improvement projects which utilise routine data.

Item Type: Article
Subjects : Health Care
Divisions : Faculty of Health and Medical Sciences > School of Health Sciences
Authors :
NameEmailORCID
de Lusignan, SimonS.Lusignan@surrey.ac.ukUNSPECIFIED
Jones, SUNSPECIFIEDUNSPECIFIED
Liaw, S-TUNSPECIFIEDUNSPECIFIED
Michalakidis, Georgiosg.michalakidis@surrey.ac.ukUNSPECIFIED
Date : May 2012
Copyright Disclaimer : © 2011 PHCSG, British Computer Society. This is an open access article under the CC BY license.
Depositing User : Symplectic Elements
Date Deposited : 21 Jun 2017 12:33
Last Modified : 30 Jun 2017 13:46
URI: http://epubs.surrey.ac.uk/id/eprint/722285

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