‘It’s all bad news’: the first 3 months following a diagnosis of malignant pleural mesothelioma
Arber, AM and Spencer, L (2013) ‘It’s all bad news’: the first 3 months following a diagnosis of malignant pleural mesothelioma Psycho-Oncolgy, 22 (7), pon_31. pp. 1528-1533.
Objective: This study explores patient’s experience during the first three months following a diagnosis of malignant pleural mesothelioma. Methods: This study uses a grounded theory approach with semi-structured, face-to- face interviews with ten patients during the first 3 months following diagnosis. Results: The key concept that emerged from the data was this: Uncertainty and lack of control, leading to emotional, physical and psychosocial distress. Three themes informed the key concept: ‘ it’s all bad news’, ‘good and bad days’ and strategies of amelioration. Patients worked with a short-term perspective on their illness but worried about the long-term outcome and the speed of their deterioration. Conclusion: Patients receive insufficient psychosocial support during the first three months following diagnosis. An early palliative care referral would improve support and referral strategies during the first three months of the disease.
|Divisions :||Faculty of Arts and Human Sciences > Sociology|
|Date :||July 2013|
|Identification Number :||10.1002/pon.3162|
|Uncontrolled Keywords :||mesothelioma, grounded theory, patient experience|
|Additional Information :||The definitive version is available at <a href="<http://onlinelibrary.wiley.com/doi/10.1002/pon.3162/pdf/a>.|
|Depositing User :||Symplectic Elements|
|Date Deposited :||05 Nov 2012 16:52|
|Last Modified :||17 Jan 2015 14:48|
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