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‘It’s all bad news’: the first 3 months following a diagnosis of malignant pleural mesothelioma

Arber, AM and Spencer, L (2013) ‘It’s all bad news’: the first 3 months following a diagnosis of malignant pleural mesothelioma Psycho-Oncolgy, 22 (7). 1528 - 1533. ISSN 1057-9249

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Abstract

Objective: This study explores patient’s experience during the first three months following a diagnosis of malignant pleural mesothelioma. Methods: This study uses a grounded theory approach with semi-structured, face-to- face interviews with ten patients during the first 3 months following diagnosis. Results: The key concept that emerged from the data was this: Uncertainty and lack of control, leading to emotional, physical and psychosocial distress. Three themes informed the key concept: ‘ it’s all bad news’, ‘good and bad days’ and strategies of amelioration. Patients worked with a short-term perspective on their illness but worried about the long-term outcome and the speed of their deterioration. Conclusion: Patients receive insufficient psychosocial support during the first three months following diagnosis. An early palliative care referral would improve support and referral strategies during the first three months of the disease.

Item Type: Article
Additional Information: The definitive version is available at <a href="<http://onlinelibrary.wiley.com/doi/10.1002/pon.3162/pdf/a>.
Uncontrolled Keywords: mesothelioma, grounded theory, patient experience
Divisions: Faculty of Arts and Human Sciences > Sociology
Depositing User: Symplectic Elements
Date Deposited: 05 Nov 2012 16:52
Last Modified: 13 Sep 2014 01:38
URI: http://epubs.surrey.ac.uk/id/eprint/721368

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